Just thought that I had better update people on my past week of doctors appointments and such. On Monday I started my treatments that I am supposed to have every other week. That was an appointment that was just to make me feel better and it wasn't a switch from what I have been having done.
On Wednesday, I had an appointment with Dr. Krishna and Dr. Lauda...they are the neuromuscular doctors. I went to that with high expectations and left feeling frustrated and confused. I was extremely emotional and I couldn't explain why. The appoinment went fine. They did some simple strength tests and also tested the feeling in my feet, legs, hands, and arms. They used a safety pin and would poke my toes and up my legs until I could feel it. I will just say that on my right side I couldn't feel it until it was half way up the shine. On my left side I couldn't feel it until it was about and inch above my ankle. On my arms and hands, again my right side was worse. I couldn't feel it until it was half way up my fore arm on the right side and on my left I could feel it right above my wrist. So, that wasn't a shock and neither was the fact that I only have one reflex left in my body. My reflex in my foot is still there. They ended up taking me off the medication to supress my immune system because I do want to have more children, even if it is just one more! The medication hasn't had been studied enough to know if it could prevent me from having more children. So that was that...nothing too exciting, but I wasn't comfortable with things.
On Thursday on my way home from work my phone rang and it was an unfamiliar number. It was Dr. Krishna. He was calling to tell me that they had been looking over all my stuff from the first time I had been seen in the ER and they weren't comfortable with my diagnosis. They want to start from scratch again. They want to redo my spinal tap because the first one is showing signs of inflammation and that isn't something that someone with my condition should have with what I had been diagnosed with. They also said that both sides of my body should be equally effected and they aren't. I am waiting for a call back from Dr. Krishna because I was so in shock about the call I didn't ask anymore questions. I don't know if they have something in mind that I could have or if they are just as confused as I am. Anyway, I will keep everyone updated. I am scared to death and am putting my full faith in the Lord to help me through this. I don't know what to expect and I don't know what I could have. It is a scary thing for both Ryan and I.
On a lighter note...I can't do a post and not put a picture of my handsome little boy on it...so here he is in all his glory. I love this picture.
