Just thought that I had better update people on my past week of doctors appointments and such. On Monday I started my treatments that I am supposed to have every other week. That was an appointment that was just to make me feel better and it wasn't a switch from what I have been having done.
On Wednesday, I had an appointment with Dr. Krishna and Dr. Lauda...they are the neuromuscular doctors. I went to that with high expectations and left feeling frustrated and confused. I was extremely emotional and I couldn't explain why. The appoinment went fine. They did some simple strength tests and also tested the feeling in my feet, legs, hands, and arms. They used a safety pin and would poke my toes and up my legs until I could feel it. I will just say that on my right side I couldn't feel it until it was half way up the shine. On my left side I couldn't feel it until it was about and inch above my ankle. On my arms and hands, again my right side was worse. I couldn't feel it until it was half way up my fore arm on the right side and on my left I could feel it right above my wrist. So, that wasn't a shock and neither was the fact that I only have one reflex left in my body. My reflex in my foot is still there. They ended up taking me off the medication to supress my immune system because I do want to have more children, even if it is just one more! The medication hasn't had been studied enough to know if it could prevent me from having more children. So that was that...nothing too exciting, but I wasn't comfortable with things.
On Thursday on my way home from work my phone rang and it was an unfamiliar number. It was Dr. Krishna. He was calling to tell me that they had been looking over all my stuff from the first time I had been seen in the ER and they weren't comfortable with my diagnosis. They want to start from scratch again. They want to redo my spinal tap because the first one is showing signs of inflammation and that isn't something that someone with my condition should have with what I had been diagnosed with. They also said that both sides of my body should be equally effected and they aren't. I am waiting for a call back from Dr. Krishna because I was so in shock about the call I didn't ask anymore questions. I don't know if they have something in mind that I could have or if they are just as confused as I am. Anyway, I will keep everyone updated. I am scared to death and am putting my full faith in the Lord to help me through this. I don't know what to expect and I don't know what I could have. It is a scary thing for both Ryan and I.
On a lighter note...I can't do a post and not put a picture of my handsome little boy on it...so here he is in all his glory. I love this picture.



11 comments:
yikes camilla...i'm so sorry. not fun to have to wait all over again for a diagnosis. you will be in our prayers and i'll be thinking about ya!...i love ya girlie! Ü
ps. i love that picture too! adorable!!
Camilla my dear....we will be praying for you and I love you! Hang in there!
This is NUTS! Okay I now I say this all the time but I hope you know I am totally SERIOUS! I am here to HELP! I'm not always the best at anticipating or predicting needs so you might just have to tell me when you think of something. You are such an example of strength and faith.
I just realized that my comment posted under Ben's name...Benjamin is Chennelle :)
How frustrating. Definintely keep me updated. You'll continue to be in my prayers.
Camilla I am sorry to hear that you are back to not knowing. I know the Lord loves you though and will send you what you need to get through this! You will be in my prayers.
OHHH MY Camilla!! That is so frightening!! I just want you to get better. I'm sure you feel the same way!! I love you and hope you will feel better soon.
ps that pic is RAD
Camilla- I hope I am not out of line for doing this on your blog, but I would like to take this opportunity to invite anyone on your blog to join us this Sunday to participate in a special fast in your behalf. Any of you that would like to include Camilla in your fast this week, please do. We are all very concerned and are praying for the doctors to come up with a strong diognosis that is correct. We have all got to have faith that these men will know what it is and what to do to help make Camilla's life one of quality and peace. She is strong, and her faith never wavers. We all Love you Camilla.
No worries Camillapede, you don't become a neuromuscular doctor by not being able to figure these kinds of things out. I'm sure your doctors aren't confused, they're just going to make sure they get the correct diagnosis this time.
Camilla - I saw your comment on my post and I thought "yeah right, I know nothing compared to her." You have such a good attitude as well. I'm glad that you guys have Kayden too. What a little blessing to help get through all of this. I love you - you are always in my thoughts and prayers!
Man that is the pits. I am sorry I hope that they will figure it all out soon. Keep us posted.
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